Chronic Fatigue Support Group: Know More
Last updated date : February 23, 2023
Do you feel like people around you do not understand you? Do you often feel lonely? Are people calling you lazy for being tired all the time? It is common for people suffering from Chronic Fatigue or Fibromyalgia to feel like this. They might find it difficult to get involved in social activities. Many of them even go on to leave their jobs. They feel isolated and this tends to impact their daily lives. Many people who are suffering from this condition go through a lot of psychological and emotional distress. Whether you have the most supportive family or friends or you do not have any support, you may find a support group helpful. Read this article to know about the Fibromyalgia/ Chronic Fatigue support group.
Why Join a Support Group for Chronic Fatigue?
Support Is Necessary
Such conditions are the kind where with time you need to learn how to manage these symptoms. The process of doing that can be quite challenging and lonely. Hence, during such times it is very helpful to have a support group for Chronic Fatigue Syndrome to help you get through the days that are hard on you.
How Do I Find a Support Group for Chronic Fatigue / Fibromyalgia?
Do Not Restrict Yourself
Do not restrict yourself to only support groups for Chronic Fatigue in your community health centre. You can easily find many forums online. However, when you join online support groups for Chronic Fatigue, you need to be careful. You need to be cautious as it is online. Most of these groups are not moderated professionally. In fact, you can even consider meeting up with some of the members in real life.
Look For a Support Group that Matches your Identlty
The people suffering from both these conditions are from very diverse populations. Try to join a group that matches your gender, age or other aspects of your identity. This will help you to have a common ground with the members of the group. For example, a 20-year-old diagnosed with Fibromyalgia has different experiences due to age and other factors compared to a 45-year-old who is going through the same condition. Hence, you need to find a Fibromyalgia support group that is fitting well with your identity, to have a better impact on your life.
Start Your Own Support Group for Chronic Fatigue
Have you ever thought of starting your own group? You can initiate a Fibromyalgia/ Chronic Fatigue support group. You will feel a sense of contribution and responsibility as you are doing something. Are you living in a place where there are no support groups for Chronic Fatigue or Fibromyalgia? Access to such groups is less in rural areas. It can be challenging to find support where there is no awareness. You can start very small. You can begin with having small meetings. It could just be two or three people. You could meet every month or once a week. Look what works the best for all the group members. Also, as both these conditions can be quite draining, always remember to prioritise your health and never compromise your wellbeing. You initiating and being part of the group should empower you, it should not make you feel exhausted.
Give Support Groups Second Chances
Maybe you have previously joined a support group for Chronic Fatigue Syndrome and it was not such a great experience. You left the meeting feeling worse than before. This can happen sometimes when you fail to find the group for you that does not match your identity. Also, if you have had a bad experience in the first support group that you joined, it’s fine. I would encourage you to see how another support group suits you. Try noticing the group dynamics and how the leader of the group sets the tone. See if the group resonates with you. You never know, you might find a group that you feel comfortable in and that helps you with your healing journey.
In fact, some people do not like the very warm and fuzzy atmosphere of Fibromyalgia/ Chronic Fatigue support group. It can make some people feel like the atmosphere is overly positive and not in touch with reality. On the other hand, emotional support is important for people suffering from Chronic Fatigue or Fibromyalgia. Additionally, a sense of emotional and psychological support is very crucial for healing. The support group is a space where you find ways or hacks to find solutions for your daily life problems.
For example, you may take help from a grocery delivery guy, as it is hard for you to physically go to the grocery shop to buy things. Also, you may learn how to maintain a Chronic Fatigue friendly diet. One of your group members might share their healthy recipes and tricks that they use to improve their lifestyle. Hence, try to keep an open mind. There is a lot that you can learn from your group and be part of it.
You Need Support ( Especially When There Is Stigma)
You may find it fascinating to read ” How I Beat Chronic Fatigue Syndrome?” to understand more about Chronic Fatigue Syndrome Vs Fibromyalgia and how you can feel more energetic and less fatigued.